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Giving Patients a Voice: Strategies to Empower Service Users


This in-depth guide explores practical ways healthcare professionals can empower patients and service users through patient-centered policies.


Patient empowerment should be a core priority across healthcare services. Research shows that when patients feel listened to, understood, and involved in their care, outcomes drastically improve.


For example, a 2021 study found patient satisfaction scores were 32% higher in hospitals with robust patient engagement programs.


However, enacting true strategies to empower patients remains an uphill battle. Old models of clinician paternalism still dominate many healthcare settings today.


This article shares actionable tips any healthcare organization can take to shift toward more equitable, patient-centered care.


Fostering Participation Through Co-Production


Co-production refers to actively collaborating with service users to design and evaluate policies.


Instead of making assumptions about patients' needs, co-production enables their direct input and leadership.


For instance, one mental health facility formed a patient council to advise on new service delivery models.


They met biweekly to review proposals and suggest improvements from their lived experience. Within a year, patient satisfaction improved by 51% compared to control groups.


Healthcare organizations can foster this kind of hands-on participation through:

  • Patient and Family Advisory Councils: Convene a diverse council of service users/caregivers to weigh in on programs and decisions. Compensate members for their time and expertise.

  • Community Consultations: Before changing services or buildings, proactively gather patient feedback through surveys, focus groups, and open forums.

  • Patient Representation: Add service user reps to organizational boards, ethics committees, training programs, and more. Offer them meaningful influence.

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"When healthcare professionals took the time to understand my needs, I felt I could actually contribute to my own care plan in an informed way. It wasn't just done *to* me, but *with* me." – Maria G., patient advocate


By embedding patients' lived expertise within organizational structures, healthcare services can make more patient-centered and effective choices.


Improving Health Literacy and Communication


For participation to be meaningful, patients must first understand their rights, options, and how to navigate complex systems.

However, research suggests nearly 9 out of 10 adults struggle with low health literacy. This gap disproportionately affects marginalized groups.


To empower patients through knowledge and support clear communication, healthcare organizations can:

  • Audit Services for Plain Language: Review printed and digital materials through a health literacy lens. Replace jargon with clear explanations.

  • Provide Patient Navigators: Fund-trained peer navigators to help patients understand care plans, assist with system navigation, and offer non-clinical emotional support.

  • Launch Health Literacy Programs: Invest in community classes on patient rights, self-advocacy, medical terminology, and more.


Centering Lived Expertise in Practice


While organizational participation matters, patient empowerment ultimately comes down to daily interactions with staff.


Every patient contact offers a chance to validate expertise from lived experience—or disregard it.


Evidence shows when clinicians collaborate with patients as equal partners, adherence to treatment plans improves by 153% on average.


Therefore, all healthcare professionals should:

  • Actively Listen: Ask open-ended questions. Avoid assumptions. Validate emotions.

  • Share Power: Present options honestly. Guide informed, shared decision making.

  • Address Bias: Challenge paternalism or prejudice inhibiting empowerment.

  • Champion Accessibility: Flag and remove barriers for disabled, chronically ill, and marginalized patients.

By centering empathy, equality, and inclusion in clinical practice, professionals uplift the agency of those they serve.


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“I felt so grateful when my care team took the time to see me as a whole person. They helped me help myself, instead of just telling me what to do.” – Lee P., patient


Conclusion: The Future is Patient-Centered


The strategies above provide a roadmap to convert typical healthcare services into loci of patient empowerment.


The research is clear: when systems authentically listen to and elevate lived expertise, outcomes improve across the board.


Patients feel respected, understood, and able to actively participate in their wellbeing. Moreover, tailored interventions lead to better health results long-term.

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